Be #KIND: Vote for Harboring Hearts!

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This month vote your heart out for Harboring Hearts! We are currently in the running to receive $10,000 from KIND Healthy Snacks that will go towards our Community Program for adult and pediatric heart patients and their families and caregivers.

To date, our Community Program has benefited more than 1,500 patients and their families, offering essential respite from daily medical routines. Should we win, we will launch a new component in the Community Program aimed at enhancing the long-term health of participants. This may include: health education, integrative therapy for adult patients and caregivers, or sessions on healthy eating and food preparation with a dietician.

Voting is easy and just requires one click at http://projects.kindsnacks.com/project/harboring-hearts to make a difference in the lives of heart patients around NYC! Voting will continue now through December 31st, so be sure to cast your vote and spread the word out to friends and family, too! ❤

Harboring Hearts in Action: The Gambini Family One Year Later

It just wasn’t safe to stay anymore. Her son needed a heart transplant. She was recovering from breast cancer surgery. And the flood waters in her Little Ferry home kept rising.

Already besieged by incredible hardship, the Gambini family found themselves homeless, shuffling to shelters and staying with any friend willing to house them. They needed to lug highly sensitive medicine wherever they went. Their car had just washed up in the flooding, making transportation yet another nightmare.

Unexpectedly and mercifully, in the wake of Superstorm Hurricane Sandy, the Gambini family was thrown a life jacket by Harboring Hearts Housing. Thanks to the tireless efforts of HH, the Gambini family found a place to stay close to hospitals and their much-needed treatment.

Last weekend, the Gambini family and Harboring Hearts celebrated a year of recovery and a chance to raise more funds for more hearts in need through a special Oktoberfest dinner. All proceeds of the event were raised for Harboring Hearts programs which would help families just like the Gambinis, who were invited as special guests for a fun dinner with good food, music, and dance.

We would like to thank nj.com for their special feature on the Gambini family and Harboring Hearts! We appreciate your continued support and for covering this story that so poignantly illustrates our mission!

For all the details on the Gambini family’s heartwarming story and how HH helps heart patients, click the link below!

Recap: The Legion of Hearts Community Event

Recap written by Meghan Arsenault and Deirdre Lombardi

Harboring Hearts teamed up with the American Heart Association, Sephora, and ZICO Pure Coconut Water to host the Legion of Hearts event in the pediatric cardiology department at Mount Sinai Hospital on October 7th, 2013. About 20 volunteers joined us to provide a morning filled with cheer, laughter, and a heart-healthy breakfast!

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Over 50 patients and their families were able to take a break from their busy day and medical routine to have their face painted or makeup and nails done by makeup artists from Sephora.

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Wonder Woman made a surprise appearance and helped patients decorate their very own superhero capes.

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Everyone was delighted when Sharon Bush arrived with Teddy Share Bears for the young patients.

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Skylar Brandt, from the American Ballet Theatre, made a little ballerina’s day by giving her a signed pair of ballet pointe shoes.

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Sunny Norton was able to capture the many memorable moments with his photography throughout the event. Many thanks to all of our guests, volunteers, and supporters who joined us to make the Legion of Hearts community event a huge success!

To get involved in future Harboring Hearts events and learn more about how you can help, email info@harboringhearts.org!

Photo Credit: Sunny Norton

Photos from the Legion of Hearts

Harboring Hearts recently joined forces with the American Heart Association, Sephora, and ZICO: Pure Coconut Water to host our Legion of Hearts event at The Mount Sinai pediatric cardiology wing on October 7th, 2013.

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Not only did we get help from our super sponsors–our event was successful thanks to the talented work of our volunteers and a few special guests and super women, including Sharon Bush and Skylar Brandt from The American Ballet Theatre. Thanks to the help of our fabulous supporters, we were able to host a fun morning with crafts, face-paint, and more!

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Be sure to check out our Facebook page for more pictures from the event!

Harboring Hearts in Action: Jamilya and Ah-Niyla’s Story

For our clients, home is where the heart is, and they will do their best to stay with their loved ones–even if that means sleeping in the waiting room. Jamilya Lowery, whose daughter, Ah-Niyla, was diagnosed with myocarditis, made the decision to stay with her daughter at the cost of a good night’s sleep. Instead of renting an expensive hotel room to save money Jamilya was prepared to sleep anywhere from Ah-Niyla’s little bed to waiting room chairs.

That’s where Harboring Hearts steps in with the resources necessary to offer families a place to stay and ease the financial and emotional burdens on heart patients and their families during critical times.

Today we would like to thank NorthJersey.com for their special feature on Harboring Hearts and Jamilya Lowery and Ah-Niyla Williams. We appreciate your continued support, and for covering this story that so poignantly illustrates our mission.

For all the details on Jamilya and Ah-Niyla’s story click the link below!

Helping Patients to Adopt a Healthy Diet Can Be a Family Affair

This month we are happy to feature a post from guest blogger and nutrition expert Lisa Harper. Lisa is a freelance writer, creating content to educate and inform her readers about the importance of a healthy diet and lifestyle. She is a mother of two and when not experimenting with new recipes in the kitchen, enjoys taking walks with her family and dogs.

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Happy family having roast chicken dinner at tableOne of the toughest things that many heart disease patients face is the upheaval in their diet that comes as a result of some critical thinking and honest appraisal of exactly how good their current diet is. Food is something that can unite or divide us, and when faced with making drastic changes to diet having the guidance and support of family can really have a positive effect.

Standard American Diet Causing Health Problems

A recent study by the American Heart Association found that as many as 79% of American adults are meeting 0 or just 1 of the recommended healthy diet metrics. That means that only 21% of American adults are getting 2 or more out of 5 which is a shocking statistic. This is something that needs urgent attention as our health is suffering due to it. The study also showed that 13.2% of deaths due to cardiovascular disease were attributed to poor diet, highlighting the importance of healthy eating for us all. We owe it to ourselves to make changes to our lifestyles that will improve our health condition, and diet is an important place to start.

Making Connections for a Healthy Future

Diet is something that is a central part of our daily lives and our cultural heritage and many people grow up eating certain meals which they love and cherish. This is why is makes it extremely difficult for us to alter our diets and to kick out those unhealthy foods to the curb. Let’s face it; nobody wants to sit down with a plate of salad in front of them whilst everybody else around the table has their traditional favorite family meal. The same goes for eating out or at social events such as barbecues and social gatherings, which is why discovering that you have a cardiovascular disease and that you need to change the diet you have grown up with can be such a difficult challenge to face.

 

One of the most positive things that you can do to support a loved one with a cardiovascular disease is for everyone in the house to alter their diets in line with ‘what the doctor orders’ so that instead of it being a difficult life change that they have to go through alone, they are going through it with everyone else. When the entire household embraces the new healthy eating diet, it can create a truly positive and supportive environment, making the experience much easier on the person with the health problems. Instead of sitting there watching everyone else eating the same old meals, they are now going to be exploring new cuisines alongside their family.

Everyone Benefits

Diet is one of the foundations of a healthy body, and when a health scare comes into a family it should act as a warning for everyone to change their habits in order to avoid similar problems. By grouping together and supporting each other with something as important as a full dietary overhaul, you are helping to ensure the long term health and vibrancy of the entire family as well as providing valuable moral support for each other. This could also help to save money in the long term as it will reduce the amount of medical bills and the costs of health coverage.

More Than an Office Visit: Why Patient-Doctor Relationships Matter

For many people, a patient/doctor relationship involves an annual check-up and maybe some occasional visits when cold and flu season arrives. With the carefree days of summer around the corner, a visit to the doctor may be the last thing on our minds. But when we face more significant health challenges, it can mean more regular, intensive monitoring with specialists both in and outside of the hospital. The relationship each patient and his or her caregiver form with the healthcare team is unique and special. The nature of that relationship can also have a significant impact on the healing process. As a heart attack survivor, heart transplant recipient, leg amputee, and two-time cancer survivor, I’ve seen my share of medical specialists over the past 14 years. Here are some of the tips I’ve learned along the way.
  • Don’t be afraid to visit the doctor. We know our bodies better than anyone else, and can often tell when something feels off. Sometimes we minimize pain and may be hesitant to go to a doctor on the chance that nothing is wrong. In extreme cases, a visit to the doctor could make the difference between life or death in discovering an underlying problem.
  • Be honest with your doctor. Aside from sharing unusual symptoms, there may be hesitancy in sharing certain details about your medical history or personal life that may be relevant to the medical situation you’re coping with. Medical teams are there to help you, not judge you. Withholding information can put you in danger, and your health is not worth that risk.
  • Be prepared. A visit to the doctor can feel overwhelming, especially when there’s worry involved. Write down a list of questions ahead of time so that you don’t forget anything. It’s also good to bring someone in the room with you whom you trust. He/she can ask additional questions you might not have thought of and help you remember the information if there’s a lot to process.
  • Talk to your doctor about your goals. Your life may feel like it’s suddenly being put on hold when you’re faced with a health challenge. Talk to your doctor and/or social worker about any concerns you have with regard to work, school, family, etc. Doctors know that you’re a person, not just a patient. Tell them about upcoming events that are important to you, and talk to them about treatment scheduling to see if any adjustments are possible. Short-term and long-term goals are great ways to stay motivated and remind you of the life you’re working towards returning to full time.
  • Don’t be afraid to get a second opinion. Doctors recognize that the health landscape can be new and difficult territory to navigate and understand. If you still have questions or want a means of comparison, it may be helpful to get a second opinion from another doctor. Your health is at stake, so it’s important that you feel comfortable and trust your instincts.

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The author and family with her heart transplant surgeon, Dr. Furukawa

The author and family with her heart transplant surgeon, Dr. Furukawa

 

 

 

Recap: Harboring Hearts’ 3rd Annual Arts & Crafts Community Event

Harboring Hearts teamed up with Save a Child’s Heart Young Leadership Group and Claudia Chan’s S.H.E. Summit Week to host our annual arts & crafts event at NewYork-Presbyterian Morgan Stanley Children’s Hospital on June 12th.

 

HH and SACH YGL Volunteers!

HH and SACH YGL Volunteers!

 

Around fifteen volunteers joined us in fun-filled interaction with young heart patients and their families.  Everyone enjoyed an exciting afternoon filled with crafts, bead-making, face painting, laughter, yummy treats, and even a surprise visit from Cinderella!  With all of the great feedback from hospital guests, staff, and volunteers, we would like to make this event an ongoing tradition. We can’t wait to do it all again soon!

 

Cinderella bringing joy and fun to those who were unable to leave their rooms

Cinderella bringing joy and fun to those who were unable to leave their rooms

 

Check out our Facebook page for more pictures from the event!

If you’re interested in learning more about how you can volunteer at our next community event or in other capacities let us know by filling out our form below.

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Aveeno Grant Winners!

This past year, the AVEENO® Brand launched the Be An Active Natural™ Fund to award more than $300,000 in grants to individuals and organizations that create positive change in their communities.

Co-founder, Yuki Kotani, was nominated to receive one of eight Aveeno “Be An Active Natural” $10,000 grants and won on behalf of Harboring Hearts. This is an amazing accomplishment! We are thrilled to be recognized by Aveeno, a community that shares our efforts to celebrate natural and inner beauty as well as promote an active, healthy lifestyle. Harboring Hearts is using the generous Aveeno grant to kick-off our emergency fund, which is helping heart patients and their families meet various forms of transportation and other needs.

 

Work It Out

Exercise. Love it or loathe it, it’s one of the number one ways of keeping our hearts healthy.  At age 16, I suffered a massive heart attack from a blood clot, but the fact that I was co-captain of my school tennis team and in good physical shape is one of the reasons I was able to survive such a major event. While I waited 9 months for my heart transplant, doctors emphasized how much exercise would help for a successful operation. Now that I’ve had my heart almost 14 years, I realize how fortunate I am to have received it, and I try to stay active to ensure it keeps ticking.
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  • The American Heart Association recommends 150 minutes per week of moderate exercise (30 minutes, 5 days a week), or 75 minutes of rigorous exercise (25 minutes, 3 days per week).
But let’s face it: it’s not always easy. For those of us who are “allergic” to the monotony of treadmills, many gyms offer classes ranging from disco spin cycling to hip hop and break-dancing. But gyms can also be expensive, and sometimes it’s hard to carve out time in our otherwise busy lives. Despite these barriers, there are fun, creative ways to help exercise seem less like a chore.
  • Break it down: 150 minutes a week sounds pretty daunting. Even 30 minutes seems like a lot of time to spare most of the week. But breaking that time into shorter intervals: 15 minutes in the morning, 15 in the evening, makes it more digestible.
  • Make it less deliberate: I find that exercise feels less like an obligation and more “unintentional” when I build it into my everyday routine. Since I live in NYC, this might mean getting off the subway a few stops earlier on my morning commute, but it could also mean taking the stairs instead of the elevator in your office building or parking further away. Every little bit counts.
  • Make it an excuse to socialize: I’ve always enjoyed taking long walks. Not only is it a great way to take in fresh air and scenery, it gives me span of time to catch up with family or friends. Back in the days when I was still rebuilding my strength, my parents would bring along a wheelchair in case I needed to rest midway. Now when my parents visit, we always make time to wander through the park, stroll by the waterfront, or meander through a new neighborhood. Having set plans with an exercise buddy also makes both of you accountable to each other in achieving your goals.
  • Make it rewarding: Whether it’s swimming at your local pool, organizing a dance party, or co-opting your kids’ video game system for Wii fitness or Dance Dance Revolution, there’s no reason “exercise” has to be traditional. Running or walking in support of charities like Harboring Hearts can also motivate you when every extra mile means helping others.
No matter how you choose to stay active, it’s important to always consult with your doctor if you’ve been dealing with health challenges. But with a little creativity, you may find yourself enjoying exercise in spite of yourself. Your heart will thank you for it.
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Twitter: @jessicamelore