VAD/Transplant Support Group at North Shore University Hospital

On April 9th at North Shore University Hospital, 35 patients and caregivers attended a LVAD and Heart Transplant Support Group. The evening began with warm introductions from around the packed room which included cardiologists, attending cardiac-physicians, cardiac surgeons, heart transplant and LVAD coordinators, pharmacists, social workers, and nutritionists alike. Patients and caregivers shared their hopes and fears and connected with each other while enjoying heart healthy food and small gifts from Harboring Hearts.

 

Northwell Support Group

Thank you to Russ Tisman for sharing his transplant journey with the group. Thank you  to Yajaira Garay from Capital One Bank who helped make 30 Care Packages which included an Inspirational frame and Magnets of Hope. Lastly, a huge Thank you to the entire North Shore University Hospital cardiac team who brought together such an inspiring group of heart patients, caregivers and supporters!

Harboring Hearts Celebrates Heart Month 2019!

We are so grateful for our patients, families, hospital partners, volunteers, donors, and supporters! In February, we celebrated our Harboring Hearts family through various hospital events, fundraising events, and community collaborations.

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Annual Pediatric Cardiology Valentine’s Reunion at Mount Sinai Hospital – With the help of our volunteers from Mulesoft and our Junior Board, caregivers and patients alike brought out their creative side as they made beaded hearts and inspirational hearts of kindness for this annual heart celebration. Thank you Mulesoft for your partnership and for such extraordinary volunteers joining us!

 

CHAM Heart Transplant Reunion: Montefiore

Annual Pediatric Reunion Heart Party at the Children’s Hospital at Montefiore – With the help of two magicians and 8 volunteers from Capital One Bank, over 130 heart patients, and caregivers made arts and crafts, took photos in the photo booth, and danced the evening with away. We are grateful for your support Capital One!

Community Collaborations:

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Thank you to Veronica Beard Gives Back for such an amazing partnership! Within the month of February, $10 from every online purchase through Veronica Beard was donated to Harboring Hearts. Demi Grace, HH supporter, singer, and caregiver to her mother, joined this campaign to help raise awareness about the role caregivers plan in the health journey of their loved one. Thank you, Demi and VBGB!
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Thank you to Karen owner of First Wind Cycling and Fitness in Charlotte, North Carolina. On February 26th, she hosted a spin class in honor of Heart Month for Harboring Hearts. It was a great way for participants to give back and keep their heart healthy at the same time!

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Thank you to Bloomingdale’s Soho for hosting our “Love Your Heart” Panel Discussion and Shopping Event on February 21st! With the help of our moderator and wonderful panelists, guests learned from experts of ways they could keep their heart a bit healthier this year while using their consumer dollars for good!

Thank you to Nike Soho, Holly Rilinger (Nike Master Trainer) and Nate “Tiny” Archibald (NBA Hall of Famer, Boston Celtics) for your support as we celebrated our patients and families during our Annual Family Fun Day celebration on February 28th! Six of our pediatric patients and their families came together to celebrate their heart journeys! HUGE thank you to Levain Bakery and Il Mattone for your donation to our celebration – every bite was memorable and delicious!

Sports Event with Nike SoHo at NYP

Athletes from the Nike SoHo Store spent November 28th with the pediatric patients at NewYork Presbyterian-Morgan Stanley Children’s Hospital. With sports the theme of the party; volunteers, patients, and caregivers alike danced with Elmo and grooved to the sounds of DJ Intake!

We engaged forty-seven patients and their caregivers in five activities throughout the afternoon. They made exercise themed beach balls, created a healthy food pyramid of their own, discovered how blood flows through the body, made a finger puppet inspired soccer field (with opponents), and experienced listening to their active and resting heart rate.

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Thank you to Nike SoHo, Clowns.com, DJ Intake, and staff at NewYork Presbyterian-Morgan Stanley Children’s Hospital for another great event!

Care Packages with Capital One Bank!


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Eager to brighten up the day of pediatric heart patients and their families, 8 Capital One Bank volunteers spent their time away from their respective locations to prepare Care Packages at Morgan Stanley Children’s Hospital on September 27th.

In the bags they so carefully assembled were ceramic banks, inspirational picture frames and bags of hope! Each volunteer spent the first few hours of their day crafting their special gift to be placed in the packages. Once complete, they then added gifts for the siblings of the patients, crayons and a small journal and for their parents, a few self care items as well!

At the end of the day, our volunteers brought smiles and hope to the patients, their parents, and the team on the pediatric cardiac floor at Morgan Stanley Children’s Hospital. Lunch was also provided for the families of the patients! Thank you to Capital One Bank for your continued support and for giving hope to 18 hearts today!

Care Package Items


September is Children’s Cardiomyopathy Awareness Month!

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All too often, we read a headline of a star athlete who suddenly collapses on the night of the big game, or a baby who dies in her sleep. Chances are, a little known heart disease is the cause. Harboring Hearts is partnering with the Children’s Cardiomyopathy Foundation (CCF) for Children’s Cardiomyopathy Awareness Month this September to shine a spotlight on pediatric cardiomyopathy, a chronic and potentially life-threatening heart disease.

Cardiomyopathy is the leading cause of sudden deaths and heart transplants in children under the age of 18. Many times, it is “silent” in its symptoms and not diagnosed until after a tragedy occurs. Children’s Cardiomyopathy Awareness Month calls public attention to the signs, symptoms and risk factors for cardiomyopathy, which will help identify more undiagnosed, at-risk children and get them the appropriate medical attention to prevent premature death.

 

It is estimated that more than 30,000 children are living with cardiomyopathy in the U.S. Harboring Hearts will celebrate the awareness month with #KnowYourHeart educational activities that include sharing cardiomyopathy family stories and raising awareness during our events in September! For more information visit www.childrenscardiomyopathy.org.

 

Vincent at the Nike Store

Hope 4 Hearts Days in August!

TWO HOPE 4 HEARTS DAYS IN AUGUST!

On August 21st, Vincent learned how to make sushi (his favorite food) along with his brother and parents during his Hope 4 Hearts Day in New York City! He learned various culinary techniques and enjoyed Green Tea Mochi for dessert after his two hour cooking class. Thank you to Chef Sabrina Sexton and Elisha for making his experience a unique one. He and his family were also given a tour of the Institute of Culinary Education located in downtown Manhattan. Later the same day, Vincent toured the Nike Store in SoHo, received a custom made jersey and spent time with the Nike team to learn about their roles and dedication to giving back to their communities. Vincent concluded his day at Dig Inn in SoHo and shared in a heart healthy meal with his family! Thank you to our partners: Institute for Culinary Education, Nike Store in SoHo and Dig Inn for giving Vincent and his family such memorable experiences!

H4H MS Teens Transplant Support

On August 22nd, we hosted 7 teen heart transplant recipients during our first Teen Mentoring Day at The Met Museum. Together the teens had a fun and interactive day, a discussion about their heart journey and connected with other teen transplant recipients. We provided a forum for open and honest discussion in partnership with Taylor Clarke, a heart transplant recipient who also received her transplant as a teenager. Taylor led the 45 minute mentoring session and joined our teens in forging a sense of community within the group! We look forward to connecting again! Thank you to our partners: Taylor Clarke, the team at Mount Sinai and author Amy Silverstein for providing signed copies of her book Sick Girl, and The Met Museum!