FROM OUR BLOG


10 Facts about Children’s Cardiomyopathy – from the Children’s Cardiomyopathy Foundation. Cardiomyopathy is a chronic illness of the heart muscle that causes the heart to decrease its ability to pump blood. In severe cases, it can lead to heart failure. There are five forms of cardiomyopathy: dilated (DCM), hypertrophic (HCM), restrictive (RCM), arrhythmogenic right ventricular (ARVC) cardiomyopathy, and left ventricular non-compaction cardiomyopathy (LVNC). Each of these forms is based on a different part of the heart muscle being affected. Cardiomyopathy
Harboring Hearts is partnering with the Children’s Cardiomyopathy Foundation (CCF) to promote Children’s Cardiomyopathy Awareness Month this September. The awareness month calls attention to the signs, symptoms, and risk factors for cardiomyopathy and sudden cardiac arrest.    Cardiomyopathy affects how the heart muscle pumps blood through the body, and it is a leading cause of sudden cardiac deaths and heart transplants in children.    Throughout the month, Harboring Hearts will be posting facts and information on Children’s Cardiomyopathy. Children’s Cardiomyopathy
As we begin to see families preparing for the next months ahead with back to school and fall we understand there may be concerns about what it will mean since we are still experiencing the COVID-19 Pandemic. Please know that our team at Harboring Hearts is thinking of you and your family during this stressful and unsure time. In hopes of relieving some concerns you and your family may have, we are linking the CDC’s COVID-19 Portal and the specific
We recognize the impact COVID-19 has had on patients and their families who have lost their jobs due to the pandemic. To help support you and your family we have included in this post link to resources for those seeking employment after their job was impacted by COVID-19. This link has a wide arrange of resources on job searches as well as ways to protect yourself and take precautions while working. We hope that this will help to support you
As COVID- 19 restrictions begin to be lifted and places will begin to reopen in New York, we understand that the patients and families we work with may have concerns with what this means and how they will be able to keep themselves safe. We are providing a link to New York State site will information on what the different phases of reopening mean. Also included is information specifically about guidelines and how to continue to protect yourself during this
Facing a pandemic as a patient who has had a transplant, or is waiting for a transplant, is an extremely difficult situation. As we face this journey together, please know that as transplant patients and families you are in the thoughts of the staff at Harboring Hearts and the rest of the transplant community. To help answer some of these questions and concerns we have linked information and resources from the American Society of Transplantation: https://www.myast.org/coronavirus-disease-2019-covid-19-frequently-asked-questions-transplant-candidates-and-recipients#  We hope you find these resources
As we navigate these uncertain times, please know that you and your family are in our thoughts here at Harboring Hearts. There is an emotional and mental toll that can come along with having uncertainty and stress associated with this pandemic: health, housing, food, employment, and so many others. Some helpful exercises to help while at home are meditation and yoga. Exercises such as yoga help to increase endorphins which helps you to feel better and more energized. Taking safe
Wellness and Entertainment Resources During Self Isolation As we continue this self isolation journey together, know that you and your family are in our thoughts. During this time it can be difficult to find activities or resources that will contribute to the overall well-being of you and your family so our wonderful Junior Board Members have created a guide to help support you and your loved ones during this time.  Here is the link to the Google Form with these
On March 4th Harboring Hearts hosted a Heart Party at NewYork-Presbyterian Morgan Stanley Children’s Hospital. The theme was Dr. Suess and included arts and crafts projects based on popular Dr. Suess books including The Lorax, Horton Hears a Who, and the Cat in the Hat. There was also music and dancing, as well as an appearance by none other than the Cat in the Hat! Thank you to our volunteers from MuleSoft who engaged 40 patients and their caregivers with
Harboring Hearts-CHAM Party 2.27.20 Harboring Hearts-CHAM Party 2.27.20 On February 27th Harboring Hearts was grateful to support and host the Annual Heart Party at The Children’s Hospital at Montefiore (CHAM). Throughout the event, 82 people enjoyed the night with a lot of fun activities. The theme was Wild, Wild, West. There were activities that included face painting, arts and crafts, and a virtual reality game that looked inside the heart. There was also popcorn, festive decorations, a wonderful dance performance