All too often, we read a headline of a star athlete who suddenly collapses on the night of the big game, or a baby who dies in her sleep. Chances are, a little known heart disease is the cause. Harboring Hearts is partnering with the Children’s Cardiomyopathy Foundation (CCF) for Children’s Cardiomyopathy Awareness Month this September to shine a spotlight on pediatric cardiomyopathy, a chronic and potentially life-threatening heart disease.
Cardiomyopathy is the leading cause of sudden deaths and heart transplants in children under the age of 18. Many times, it is “silent” in its symptoms and not diagnosed until after a tragedy occurs. Children’s Cardiomyopathy Awareness Month calls public attention to the signs, symptoms and risk factors for cardiomyopathy, which will help identify more undiagnosed, at-risk children and get them the appropriate medical attention to prevent premature death.
It is estimated that more than 30,000 children are living with cardiomyopathy in the U.S. Harboring Hearts will celebrate the awareness month with #KnowYourHeart educational activities that include sharing cardiomyopathy family stories and raising awareness during our events in September! For more information visit www.childrenscardiomyopathy.org.